Monthly Archives: September 2014

Happy Birthday Ellie!

I’ve been thinking about this day, Ellie’s first birthday, for a long time now. When Ellie was born and still in the NICU, when I was learning to understand her diagnosis, when I missed her sleeping in a bassinet beside … Continue reading

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Milestones

Mobility milestones are big, and for my girls they feel infinitely huge. I know such milestones are huge for any parent, and many parents are battling more in this subsection than we can even imagine, but for a little girl … Continue reading

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A conversation with Mya

The topic of Down Syndrome has been a bit of an open conversation with Mya. She’s heard the words, she knows Ellie has a lot of appointments to help her because of her Down Syndrome, but we’ve never had a … Continue reading

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A tooth!

This morning as I was feeding Ellie her breakfast I noticed a little tooth poking out of her gums. I’ve been waiting a while for this tooth. I suspected teething many months ago, around 6 months when Mya got her … Continue reading

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6 months post op

I can’t believe that it’s been 6 months since Ellie’s heart surgery. 6 months of a healthy baby. 6 months of eating and growing and breathing with ease. 6 months of not worrying. 6 months where every day heart surgery … Continue reading

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Therapy

As you all know we have a wonderful group of people who help us with Ellie’s development. They come to our house on a regular basis and always arrive smiling and ready to help Ellie with whatever she needs. Today … Continue reading

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A few favorite things

1) My Beaba! It is the most wonderful cooker and maker of baby food! Ellie is still working on her refusal to eat textures so she’s been on a puréed diet for quite some time now. This wonderful device steams … Continue reading

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